My son has a PICC line due to having a Brain Abscess caused by
an ear infection. He has had the PICC line in for 10 weeks now,
projected duration of PICC line is 4 more months an if it does not
clear up, he will need surgery to remove the brain abcess which is
on the speech center of the brain (and he may permanently lose his
ability to speak). We have been using a Tegaderm covering and
changing the dressing weekly. Unfortunately, his skin has become
inflamed and infected under this Tegaderm.
He was seen in the ER at University-Rainbows Cleveland, Ohio on
Tuesday 1-15-08. They sent down an IV nurse to clean his arm and
redressed it with your SorbaView 2000 # SV46XT, sent us home with a
prescription (no samples or extra dressing), to get from our home
health care provider. His PICC line was not infected, but the
surrounding skin was highly infected, it has cleared up
substantially in the last 3 days since the SorbaView went on (the
skin can breathe and heal).
The next day I called Home Health Care to place the order, but
they did not carry your product, nor did they have anything
comparable, nor did the hospital pharmacy. The last 2 days I have
tried to purchase this dressing or something like it, (called
numerous other pharmacies, medical and surgical supply companies
and even a few hospitals, and on line using the internet) my home
health care provider and others have tried, no luck. I contacted
the hospital IV department to see if I could purchase it directly
from them, no luck. I am truly at a loss of how to obtain this
dressing for my son, and no one else seems to be able to get it
either. I think it would be easier for me get ahold of plutonium or
uranium at this point! I find it hard to believe that a product
that is used by the hospital, and sends its patients home with
it,with a need for continuous use of the dressing, cannot be
purchased for home use by that patient.
I am asking for your help to get my son the proper supplies for
on-going home care. I have a prescription for the dressing, I carry
insurance and am even willing to pay out of pocket for the
dressing, as long as it will help my son heal and not get skin
infections like from the previously used Tegaderm, which does not
allow his skin to breath beneath it. If it is your company policies
or contracts not to sell to the public, I understand, but why can't
you sell it to the Home Health Care, and I'll get it thru them, or
the hospital pharmacy, or some other supply place.?
I have found out from some of the nurses, that my son is not
the only one who has had skin reactions to the Tegaderm due to long
term use, but like myself, they too cannot find a solution, (short
term solution is to cover the injection site with gauze, but this
now opens up the possibility of infection at the site due to it not
being sealed). Its kind of being between a rock and a hard
place.
The SorbaView 2000 seems to be the best solution at this time
for this ongoing condition, and would relieve the pain and
suffering our children go thru with every dressing change. As a
parent, I will do everything in my power to stop my child from
feeling pain, especially unnecessary pain caused by a simple
dressing, because at this point, he has gone thru so much
already.
Dejana C.- Mother of Patient